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Issue 82: Kielstein, Rita: Genetik und Ethik der autosomal dominant polyzystischen Nierenerkrankung. 1st edition: June 1993; 2nd edition: March 1995

 
Autosomal Polycystic Kidney Disease (ADPKD) is one among a dozen severe hereditory diseases which now can be diagnosed by DNA diagnosis. In some cases carriers will know about risk factors long before symptoms occur. Carriers will also have the opportunity to 'prevent' an offspring from having the disease by not having this particular one offspring who is a carrier; this 'prevention' may be done by means of preimplantation diagnosis or abortion following prenatal diagnosis. Information about more and more risk factors for health will change the traditional concept of health and disease and calls for an new form patient-physician interaction, for the development of a carrier-ethics and a new dimension in physician-ethics. This paper includes a list of 111 recent publications on ADPKD.
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